Mike, Bobbi Jo and Hope Ringeisen
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2007 Jackpot Junction Angel Fund
The Jackpot Junction Casino Hotel Angel Fund was developed in 2003 and the annual employee golf tournament became an annual fundraiser. This year is the 5th annual and is scheduled for Monday July 2nd. Monies raised are used to benefit ill children and their families in the local community. Proceeds from the event are used to send each year’s chosen recipient and their family on a dream vacation or provide them with necessities needed to improve their quality of life.
Funds are generated through vendor hole sponsorships, hole in one contests, drawing tickets, and a generous contribution from Jackpot Junction Casino Hotel. |
There is no prize money awarded to the winning team. Names are added to a plaque for recognition and displayed at Dacotah Ridge Golf Club. The real champion of the tournament is the Angel Fund recipient and the family. They receive a dream vacation or other necessities that help to improve their quality of life and reduce the stress in their daily lives.
This year’s child and family are from Franklin MN. Hope Ringeisen is this year’s recipient. Hope is 3 years old and is the light of everyone’s life that she comes in contact with. Hope just makes you smile!!!
Hope has been diagnosis with Opitz-C and Pierre-Robin Syndrome. Opitz-C is a random genetic anomaly. Hope has some organ anomalies. Hope also has some bone Struthers problems. She may also have some learning disabilities.
Opitz-C
C syndrome, also known as Opitz trigonocephaly syndrome, is a rare disorder transmitted as a result of "gonadal mosaicism". Mosaicism refers to a condition in which a person has cells that differ from each other in genetic makeup. The difference is usually a variation in the number of chromosomes. Normally, all body cells would have 46 chromosomes, but in mosaicism, some cells may have 45 or 47. Mosaicism occurs as a result of an error in cell division very early in fetal development.
Affected individuals are born with a malformation in which the head is a triangular shape due to premature union of the skull bones (trigonocephaly), a narrow pointed forehead, a flat broad nasal bridge with a short nose, vertical folds over the inner corners of the eyes, an abnormal palate that is deeply furrowed, abnormalities of the ear, crossed eyes (strabismus), joints that are bent or in a fixed position, and loose skin. Developmental and learning disabilities are common.
Pierre Robin Syndrome
This syndrome was described in 1923 by Pierre Robin in which he described airway obstruction associated with glossoptosis and hypoplasia of the mandible. Today this syndrome is characterized by retrognathia or micrognathia, glossoptosis, and airway obstruction. An incomplete cleft of the palate is associated with the syndrome in approximately 50% of these patients.
In patients with micrognathia (small jaw) or retrognathia, the chin is posteriorly displaced causing the tongue to fall backward toward the posterior pharyngeal wall. This results in obstruction of the airway on inspiration. Crying or straining by these children can often keep the airway open. However, when the child relaxes or falls asleep, airway obstruction occurs. Due to these respiratory problems, feeding may become very difficult. This can lead to a sequence of events: glossoptosis, airway obstruction, crying or straining with increased energy expenditure and decreased oral intake. This vicious cycle of events if untreated can led to exhaustion, cardiac failure, and ultimately death.
Treatment of this syndrome can be divided into conservative therapy versus surgical intervention. The majority of these patients can be managed by placing the infant in the prone position until adequate growth of the jaw occurs. This causes the jaw and the tongue to fall forward opening the airway. If this type of treatment fails the infant should then be considered for a tongue-lip adhesion (a procedure to pull the tongue forward) or a tracheostomy.
In children with severe underdevelopment of the lower jaw, a new technique called mandibular bone expansion is now available. This technique also called distraction osteogenesis involves placement of an expansion device that is turned daily to slowly lengthen the jaw. An external incision is required to make a surgical cut through the jaw bone with placement of pins that are secured to the expansion device. Once the amount of expansion of the bone has been obtained (4-5 weeks) the device is then kept in place until the bone gap heals with new bone formation
(8 weeks). This technique can be performed at a very early age which is a significant advantage over the traditional technique of lower jaw lengthening.
Hope had open-heart surgery at one and a half weeks old, at 3 weeks she had her jaw broken and slowly pulled out with brackets. Then she had surgery on her stomach and intestines. Three weeks later they had to do surgery again to fix her intestines. Hope also wore hip and leg braces for the first ten months. Surgery was performed on her skull to make room for her brain to grow and reduce the chances of her going into a coma. Hope has also had surgery on her hips and both feet and this winter they will be doing her knees. Hope’s knees are missing the connecting tendons. Hope also has problems with her eyes, she has one that is lazy and is starting to cross over. Hope also has small retinas and the optic nerves twitch , which give her problems with her eyes. The Doctor’s are not sure what this will mean in the long term.
Proceeds from the Jackpot Junction Angel Fund will also be used to benefit other families chosen this year. Additional information regarding those children and families will be released upon completion of the fund raising event.
Our goal this year, from Vendor Sponsorships, Entry Fees, Drawing Tickets and planned events on the golf course is to raise $25,000.00.
On the day of the event, employees and other participants will be able to generate additional funds by purchasing drawing tickets, and participating in two different Hole-In-One contests.
For additional information or if you would like to contribute please contact: Patrick Covell at Jackpot Junction Casino Hotel, 507-697-8111 or by e-mail at patrick@jackpotjunction.com |